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Directory Sites
Myeloproliferative Disease Support Group and Mailing List
Information on chronic myelogenous leukemia, polycythemia vera, essential thrombocythemia, agnogenic myeloid metaplasia, myelodysplasia, myelofibrosis. For patients and health professionals. Archives available.
members.aol.com
Learn about this organization whose mission is to raise public awareness, support research, investigate new treatments, and eventually to find a cure for myeloproliferative disorders.
mpdfoundation.org
A look at the causes, types, signs and symptoms, diagnosis, treatment and prognosis of myelodysplastic syndromes.
www.lrf.org.uk
General information, cellular classification, stage information, treatment options, de nova, secondary and previously treated myelodysplastic syndromes.
cancernet.nci.nih.gov
Provides myelodysplastic syndromes treatment and research information for patients and caregivers.
www.allaboutmds.com
Myelodysplastic Syndromes Foundation
Provides information about the organization and the disease. Offers research updates, international registry, continuing education, and forums. Organization provides patients with referrals to Centers of Excellence and contact names for available clinical trials.
www.mds-foundation.org
Myelodysplastic Syndromes (MDS) Center
A specialized center at the University of Massachusetts Memorial Health Care
www.umassmed.edu
Aplastic Anemia and MDS International Foundation
Resource for patient assistance and emotional support; includes educational materials, medical information, and research.
www.aamds.org
Brian Zikmund-Fisher's MDS/BMT Site
A patient's experience with MDS and bone marrow transplant.
www.bzffund.org
A resource dedicated to providing up-to-date information about myelodysplastic syndromes (MDS) to physicians and patients.
www.managemds.com
MedNews: Myelodysplastic Syndromes
General information, stages, classification, and treatment overview.
www.meb.uni-bonn.de
National Cancer Institute: Myelodysplastic Syndromes
General information about the syndromes, treatment options, diagnosis, and prognosis.
www.cancer.gov
The Slone Epidemiology Center at Boston University is enrolling patients who have been recently diagnosed with myelodysplastic syndrome (MDS) in a voluntary research project called the Patient Registries at Slone : MDS.
www.bu.edu