Directory Sites

  • Hearts Of Hope

    Stories of children born with a very serious heart defect known as hypoplastic left heart syndrome (HLHS). Help in finding relevant information and links, especially in Australia.

    www.heartsofhope.iinet.net.au

  • Congenital Heart Disease Information and Resources

    Interactive forums, Internet links, and peer-reviewed informational materials for families, adults with CHD, and health professionals.

    www.tchin.org

  • Congenital Heart Diseases Their Study and Treatment

    A most complete manual, text and graphics by Oliver W. Caminos M.D. (1999)

    www.redtail.net

  • About.com

    Information about congenital heart defects, and February 14th being recognized as a day for hearts.

    heartdisease.about.com

  • Minimal Invasive Congenital Heart Surgery

    An article about treating birth defects of the heart using this techniques.

    heartdisease.about.com

  • CHD Support Graphics

    A collection of banners, buttons, dividers and even e-cards to spread awareness about birth defects of the heart.

    heartdisease.about.com

  • Resources from California State University

    Very extensive list of congenital heart diseases with links to sites dealing with that particular disease. Information to help parents and provide support.

    www.csun.edu

  • HLHS Information

    Treatment options for newborns with Hypoplastic Left Heart Syndrome. Includes questions to ask the hospital, surgeon, and insurance company.

    www.hlhsinfo.homestead.com

  • Palliative Operations

    The early staged operations for patients with this congenital heart defect, Tetralogy of Fallot, that lead up to the final correction surgery.

    heartdisease.about.com

  • Ventricular Septal Defect

    VSD is one of the commonest congenital heart defects, where there's a hole in the wall between the two lower chambers of the heart. An article from About.com with Richard N. Fogoros.

    heartdisease.about.com

  • Miami Children's Hospital

    Department of Cardiovascular Surgery provides a list of surgeries performed along with actual pictures and a lot of information about each. A form on-site to ask questions or give comments.

    www.pediatricheartsurgery.com

  • CHD Awareness Day

    The Children's Health Information Network has brought global attention to the dreaded problem of Congenital Heart Defects by a co-ordinated effort from parents and families of CHD victims.

    www.tchin.org

  • Persistent Pulmonary Hypertension of the Newborn

    A definition along with look at the diagnosis, treatment and the prognosis, from the University of Washington Academic Medical Center.

    neonatal.peds.washington.edu

  • Coping with Congenital Heart Disease in Your Baby

    Article with some useful information, published by The American Academy of Family Physicians.

    www.aafp.org

  • Adult Congenital Heart Association

    Information, resources and support for adults with congenital heart disease.

    www.achaheart.org

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