Directory Sites

  • Foundation for Retinal Research

    Information about the condition (along with background about heredity and eye function), resources for families, and solicitation for donations to fund research.

    www.tfrr.org

  • The CAF Directory

    A description of the disease and its inheritance patterns.

    www.cafamily.org.uk

  • Foundation Fighting Blindness

    Includes clinical information, inheritance patterns, and ongoing research for treatments.

    www.blindness.org

  • Yahoo Groups: LCA

    For those interested in sharing and sourcing information relating to this genetic disorder. Includes a chat, photos, and a message board.

    groups.yahoo.com

  • Gene Reviews

    Description of the genes responsible for causing LCA, including information about genetic testing and differential diagnoses.

    genetests.org

  • LCA Blog

    A patient's journal, mainly focusing on research breakthroughs and news updates.

    lcablog.blogspot.com

  • National Institutes of Health

    Real Video archive of the December 13, 2005 presentation to the NIH regarding gene therapy research and trials for LCA. Clicking this link will begin download.

    www.webconferences.com

  • EyeRounds

    Dr. Edwin Stone delivers a presentation on the disease, its genotype, and current genetic breakthroughs.

    webeye.ophth.uiowa.edu

  • OMIM

    Information about the disease, focusing on gene mutations and associated symptoms. Links to numerous full-text research reports.

    www.ncbi.nlm.nih.gov

  • WonderBaby

    News, facts, and information about the disease, including an extensive FAQ.

    www.wonderbaby.org

  • Project 3000

    A nonprofit collaborative project with the aim to identify every person in the United States affected with LCA and offer them free genetic testing through the Carver Genetic Testing Laboratory at the University of Iowa.

    www.carverlab.org

  • 1st Touch Foundation

    Chicago Cubs player Derek Lee's official website devoted to finding all 3000 people in North America with LCA.

    www.1sttouch.org

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