Directory Sites

  • The Natey Foundation

    Information for parents and families of Battens victims.

    www.nateyfoundation.org

  • Nathan's Battle

    Details a boy's fight against Batten's Disease and dedication to promote awareness to help find a cure.

    www.nathansbattle.com

  • Batten Disease Support and Research Association

    BDSRA goals, support groups, local chapters, and resources for parents and families of Batten Disease patients.

    www.bdsra.org

  • The Luke and Rachel Batten Foundation

    Created to engage in education and medical research toward diagnosis, treatment and/or cure of Juvenile neuronal ceroid lipofuscinosis (Batten disease) and to assist persons with the disease.

    lrbf.org

  • Batten Disease Information Page

    Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.

    www.ninds.nih.gov

  • Sacha's Story

    Personal story of a young girl in the UK, includes journal, blog and information about the disease.

    www.sachasstory.co.uk

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