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Directory Sites

The CaF Directory
Information about the ectodermal dysplasia disorders, the inheritance patterns and pre-natal diagnosing.
www.cafamily.org.uk
The Andy Fund
Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene.
www.andy.org.mx
National Foundation for Ectodermal Dysplasia
ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services.
www.nfed.org
The Ectodermal Dysplasia Mailing List
Includes instructions on joining the list, FAQs and links to further resources.
hometown.aol.com
Ectodermal Dysplasia Society
Information about the organization as well as the ED condition. Includes links, news articles and contact details.
www.ectodermaldysplasia.org
NORD: Ectodermal Dysplasias
Offers synonyms, a general discussion and resources.
www.rarediseases.org

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