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Directory Sites

The Noonan Syndrome Support Group
Information about this organization as well the disease itself. Offers news, events, a survey, a newsletter and further resources.
www.noonansyndrome.org
The CaF Directory
A description of Noonan syndrome, its inheritance patterns and pre-natal diagnosing.
www.cafamily.org.uk
eMedicine - Noonan Syndrome : Article by Jennifer Ibrahim, MD
Thorough summary of history, diagnosis, and treatment.
www.emedicine.com
Noonan Syndrome
Story of 6-year-old Becky, with factsheet and resources.
www.heather.flyer.co.uk
NORD - Noonan Syndrome
Offers the synonyms, a general discussion and further resources.
www.rarediseases.org
Noonan Syndrome - by Michelle Ellis
Account of her life with the disorder.
www.guch.demon.co.uk
Birth Defects Foundation: Noonan Syndrome
History of the Foundation's involvement with Noonan's. Printable booklet and newsletter.
www.bdfcharity.co.uk

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