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Directory Sites

Proteus Syndrome Foundation
Support and education for families and professionals. Includes abstracts, brochures, glossary, links and newsletters.
www.proteus-syndrome.org
The CaF Directory
A definition of Proteus syndrome, its inheritance pattern, pre-natal diagnosis and a support group.
www.cafamily.org.uk
NORD: Proteus Syndrome
Offers synonyms, a general discussion and further resources.
www.rarediseases.org
Pediatric Oncall
Find a proteus syndrome case report, including CXR and radiographs.
www.pediatriconcall.com
Woman's 11-stone legs may be lost
The BBC reports on a Lancashire woman's campaign to raise awareness of a condition which has left her with 11-stone legs.
news.bbc.co.uk

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