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Rare Diseases
Learn more about diseases causes, symptoms, and treatment
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Directory Sites
Details about the organization as well as the disease. Includes general information, a survey, newsletter and photos.
www.robinow.org
The synonyms of Robinow syndrome, a summary and a list of major features.
www.nlm.nih.gov
A new email group for sharing and learning about Robinow syndrome. Join, post and read from this site.
groups.yahoo.com
Offers a general discussion, the synonyms and further resources.
www.rarediseases.org