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Directory Sites

Ben's Dream
Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter.
www.bensdream.org
Children's Medical Research Foundation
Funds medical research to find a cure for Sanfilippo Syndrome and other neuro-genetic disorders. News and links to summaries of research that has been supported by the foundation.
www.curekirby.org
Special Child: Disorder Zone Archives - Sanfilippo Syndrome
Describes the disorder for the benefit of parents, lists characteristics of children with the disorder, and tells what to expect.
www.specialchild.com
Bennett Children's Foundation
Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support.
www.claritystudio.com
The Sanfilippo Children's Research Foundation
Canadian based charitable group founded by the parents of Elisa Linton.
www.alifeforelisa.org
MPS III
Information, including the causes, different forms, the inheritance and how the disorder progresses.
www.mpssociety.org
Frankiepants
Personal site about a child with this disorder. Provides details about the condition.
www.frankiepants.com

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