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Directory Sites

eMedicine - Wolf-Hirschhorn Syndrome
Detailed information on differential diagnosis, genetics, likely clinical history, and symptoms.
www.emedicine.com
WHS 4p - Support Group UK
Includes a beginners' guide to the underlying genetic cause. Managed by Mrs C. V. Hilder, mother of a WHS son.
www.whs.webk.co.uk
Wolf-Hirschhorn Syndrome
German WHS Support Group, with information for parents and medical professionals. Includes a very extensive list of symptoms.
www.wolf-hirschhorn.de
4P- Support Group, Inc.
USA-based non-profit association of families of children with 4p-, offering phone support, newsletters, national biannual gathering and regional meetings.
www.4p-supportgroup.org
Brianna
Pictures of Brianna, a 4p-WHS girl born November 2000.
members.aol.com
Arran Benjamin Willock
Includes very detailed month-by-month status reports of a WHS boy born April 2000.
www.willock.net
Ryley's: A Blog About A Bloke
Parents' photos and news on their son.
www.ryley.net
Online Mendelian Inheritance in Man
Features a list of reported case studies and symptoms, genetic information, and important references.
www.ncbi.nlm.nih.gov

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