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Directory Sites

Myositis Association of America (MAA)
A non-profit organization committed to helping people with inflammatory myopathies through a variety of information and support services.
www.myositis.org
Jordan's Juvenile Dermatomyositis Diary
The diary of a 10 year old girl diagnosed with this rare disease including her treatment and progress.
www.geocities.com
All About Shelby: A JDMS Journal
Created to help monitor Shelby's symptoms, progress, and general well being. Listing of her treatments, medications, and lab results. Description of Juvenile Dermatomyositis.
www.saraspace.com
Julia's Juvenile Dermatomyositis (JDMS) Diary
How one family is dealing with this rare auto-immune disease that affects the muscles and skin.
www.ralphb.net
Myositis NW
Information and resources about inflammatory Myositis diseases. Accessible gardens, emergency preparedness for the disabled, support groups plus the author's personal site.
www.myositisnw.org
Stan's Polymyositis Site
Providing detailed, up-to-date information on diagnosis, treatment, therapy, and a diary.
home.att.net
Lenor's Journey
Read how the author deals with a diagnoses of Polymyositis and Raynaud's Phenomenon and later with Pulmonary Fibrosis.
lenorsjourney.com
Dermatomyositis
Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
www.ninds.nih.gov
Polymyositis
Information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
www.ninds.nih.gov

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