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Directory Sites
Life and Breath Foundation: In Search of a Cure for Sarcoidosis
Through its fundraising and educational activities, this foundation is committed to the research of sarcoidosis in the hope of finding a cure.
www.lifeandbreath.org
Promotes public awareness of sarcoidosis to educate patients, families and friends and the medical community. Includes clinical details, support groups, sarcoid links, newsletter and sarcoidosis related events worldwide.
www.geocities.com
National Sarcoidosis Resource Center
US-based organisation disseminating sarcoidosis news and information worldwide. Includes newsletter, images, resource guide, support group and order form for purchasing videos, books and sarcoidosis awareness ribbons.
www.nsrc-global.net
Hosted by a pulmonologist whose main interest is sarcoidosis, this site is designed for both patient and physician with an aim to link the sarcoid community for improved communication to share resources and knowledge. Features detailed explanations of sarcoidosis, references, FAQ, literature, names and address for medical and emotional support, as well as relevant internet links.
www.sarcoidcenter.com
General information on sarcoidosis and some of its manifestations.
www.epler.com
Sarcoidosis: A Medical Mystery
Information on the disease, statistics, tests and medications, with a personal touch from the author on how it affected her life. Site also has support group and links to other resources.
noairtogo.tripod.com
Sarcoidosis: A Primary Care Review
Information on the illness including images of lupus pernio, erythema nodosum, and chest imaging. Article by Mark H. Belfer, and R. Wayne Stevens of St. Elizabeth Health Center Family Practice Residency, Youngstown, Ohio. Also has list of references and a printable fact sheet.
www.aafp.org
Provides general information on the disease, links to the delphi forum, chats, other sites and a page on actress/model Karen Duffy.
sarcoidosis.netfirms.com
Sarcoidosis Worldwide Support Group
Provides patients with tools to do their own research into their condition. Includes back issues of The Sarcoid Byte newsletter. Runs chat sessions and has a log of past chats.
www.geocities.com
Offers information to assist to better manage sarcoidosis.
www.suite101.com
Links to information and overviews on the disease from several reputable sources such as the American Lung Association, as well as links to current clinical drug trials and research being conducted.
www.nlm.nih.gov
National Institutes of Health: Sarcoidosis
Publication for patients to read online. Includes descriptive information on tests with pictures of various sarcoid complications such as erythema nodosum on the legs.
www.nhlbi.nih.gov
Provides information and support. ICQ user list, chatroom, stories, poems, pictures, recipes, health tips, and inspirational messages. Also offers a support group in Bath-Brunswick, Maine, United States.
www.sarcoidconnection.com
Contains articles, links to medical journals, and a support forum.
www.sarcinfo.com
General Practice Notebook: Sarcoidosis
Description of the disease with clinically-oriented information.
www.gpnotebook.co.uk