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Directory Sites
Ehlers-Danlos National Foundation
American nation-wide support and information to those affected by EDS. Includes many articles, message boards, chat room, information for medical professionals, and regional support groups.www.ednf.org
A Syrian patient gives a personal plea for better medical support and research.
ehler.8m.com
Ehlers-Danlos Syndrome Support Group
This site offers extensive information for patients and doctors, plus links.
www.ehlers-danlos.org
Ehlers Danlos Foundation of New Zealand
Support for sufferers of the Ehlers-Danlos Syndrome and related Hypermobility Syndrome and provides some information for the medical profession and general public.
www.edfnz.org.nz
Ehlers-Danlos Syndrome Information
A series of short articles regarding genetics, diagnosis, treatment, and coping for people with EDS from the University of Washington's Orthopedics and Sports Medicine Department.
www.orthop.washington.edu
The newsletter for, by, and about people with the condition. Includes featured articles, columns, and contact information for support groups worldwide.
www.edstoday.org
Information about EDS from the National Organization for Rare Disorders.
www.rarediseases.org
Ehlers-Danlos Syndrome, Philadelphia Chapter
Local Philadelphia, PA support for EDS and connective tissue disorders, also offers a Service Guide for Invisible/Hidden Disabilities.
hometown.aol.com
American Massage Therapy Association - The Hypermobile Client/Therapist
Hypermobility can be a problem for both massage therapists and clients, AMTA discusses solutions therapists can readily employ.
www.amtamassage.org
The Hypermobility Syndrome Association
HMSA serves people with Hypermobility Syndrome, Ehlers-Danlos, and related joint disorders with information, referrals, and message boards.
www.hypermobility.org
The Canadian Ehlers-Danlos Association
Working together to provide assistance, support and resources for people living with this rare genetic disorder.
www.ehlersdanlos.ca
Arthritis Foundation Disease Center: Ehlers-Danlos Syndrome
Symptoms, diagnosis and treatment of the condition.
www.arthritis.org
Electronic Textbook of Hand Surgery
Eaton Hand provides a glimpse inside the hand, wrist, and elbow. Discover how your joints are supposed to work, what goes wrong in dislocations, and how injuries and ailments are treated.
www.eatonhand.com
HealthWise: Ehlers Danlos Syndrome
Expands on NORD's information about EDS, includes great detail on symptoms and cross-over of types.
hw.healthdialog.com
Hypermobility & Fibromyalgia Support Site
Offers information & support for ehlers-danlos syndrome, joint hypermobility, fibromyalgia, and several other related disorders.
anaiis.tripod.com