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The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.
www.marfan.org.uk
Providing accurate and timely information about the disorder to patients, family members and physicians.
www.marfan.org
Information, articles, events, a patient survey, and products. Also contains an article on Pharaoh Akhenaten who was believe to have the disease.
www.marfan.ca
Life and Issues of Marfan's Syndrome
Personal site by which describes the pathology and gives a bit of advice.
www.io.com
The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
members.fortunecity.com
American Heart Association - Marfan's Syndrome
Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.
www.americanheart.org
International Federation of Marfan Syndrome Organizations
A global information center providing links to Organizations around the world.
www.marfanworld.org
Univ. of Washington - Marfan Syndrome
What the disease is and includes the impacts on daily life.
www.orthop.washington.edu
A Question-Answer format page of information.
www.medicinenet.com
General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations.
www.marfan.sprint.pl
Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association.
user.tninet.se
Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research.
hometown.aol.com
Central Ohio Marfan Support Group
Focuses on the support group with links to information about the disease. Includes a calendar of events for meetings.
www.homestead.com
The Mystery of Akhenaten: Genetics or Aesthetics?
A history of the pharoah along with theories applied to what he may have had, including Marfan's.
www.heptune.com
Features forums, @marfanssyndrome.net email addresses and contains symptoms as well as guestbooks for both doctors and patients, a chat room and scheduled chats with professionals.
www.marfanssyndrome.net