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IFOPA - International Fibrodysplasia Ossificans Progressiva Association
Support group for families. Information about the condition, treatment, and research efforts.
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SFGate
San Francisco Chronicle article describes the disease, includes anecdotes about the lives of several patients.
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McKay Orthopaedic Research Laboratory
Summaries of current research projects at the University of Pennsylvania.
www.uphs.upenn.edu

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