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Directory Sites

Jake Moore Memorial Site
Personal page about a young man who had vanishing bone disease. Offers a support forum.
www.jakemoore.org
Gorham's Disease or Massive Osteolysis
Supporting those affected by this rare condition. From the AFAS Association. Available in English, French, and Spanish.
www.gorhams.org
The Lymphangiomatosis Foundation
Organization working on finding a cure for lymphangiomatosis and Gorham's disease through research, fundraising, and education.
www.lymphangiomatosis.org
Lymphangiomatosis and Gorham's Vanishing Bone Disease
Provides general information about the condition, a personal account, including pictures and x-rays. Also offers a message board.
www.gorhams.dk
Management of a Fracture in a Known Case of Gorham's Vanishing Bone Disease
Provides an introduction, case presentation, discussion and conclusion. Aimed at medical professionals.
www.mcmaster.ca

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