Directory Sites

  • Who has a Disability?

    Post-Polio Syndrome, CFS, progressive long term disabilities, helpful hints and links, information on SS Guidelines, equipment options, accessibility solutions, handicap lifestyle changes, family awareness and support.

    www.fortunecity.com

  • NINDS: Myotonia Congenita

    Information sheet compiled by the National Institute of Neurological Disorders and Stroke.

    www.ninds.nih.gov

  • Neuromuscular Information Services

    Provides a knowledge base and interactive forum for health care professionals on neuromuscular conditions, with a view to improving the quality of health care for neuromuscularly impaired patients.

    www.neuromuscularinfo.com

  • The Institute for Neuromuscular Research

    The aim of the Institute for Neuromuscular research is the make the lives of children better through advances in muscle and nerve research.

    www.inmr.com.au

  • eMedicine Health - Electromyography (EMG)

    Consumer health resource center providing information on the uses, benefits, and risks associated with EMG which involves testing the electrical activity of muscles.

    www.emedicinehealth.com

  • Northwestern University Neuromuscular Disorder Program

    Information for patients, professionals, and researchers about the program, affiliated clinics, neuromuscular diseases and research studies at Northwestern University Medical School.

    www.neurogenetics.northwestern.edu

  • Weldon FOP Research Fund

    Raises awareness and funding for the University of Pennsylvania and Dr. Fred Kaplan, the world's authority on Fibrodysplasia Ossificans Progressiva. Find info about the fund, news and events and support the fund.

    www.weldonfop.org

  • National Institute of Neurological Disorders and Stroke

    Also called kinsbourne syndrome, myoclonic encephalopathy of Infants, or dancing eyes-dancing feet syndrome, an information sheet compiled by NINDS.

    www.ninds.nih.gov

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