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Muscular Dystrophy
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Directory Sites
Muscular Dystrophy Association (Australia)
Extensive information on the range of disorders, research information and many links to onsite publications. Also provides an international support network with a chat service dedicated for use by the worldwide Muscular Dystrophy community.
www.mda.org.au
National voluntary agency committed to eliminating neuromuscular disorders.
www.mdac.ca
Muscular Dystrophy Association (USA)
Voluntary health agency providing information and supporting research into neuromuscular diseases, including Muscular Dystrophy. The MDA site contains information about many forms of muscular dystrophy, including lists of ongoing clinical trials, an "Ask the Experts" feature, and research updates.
www.mdausa.org
Voluntary organization in Ireland which provides support for people with muscular dystrophy and their families.
www.mdi.ie
Cell Therapy Research Foundation
Not-for-profit medical research foundation working to find a treatment for muscular dystrophy and other genetic diseases through cell/gene therapy. Site describes treatments and clinical trials.
www.celltherapy.com
Facioscapulohumeral Muscular Dystrophy Society
The FSH Society address issues and needs related to FacioScapuloHumeral Muscular Dystrophy (FSHD).
www.fshsociety.org
Logan Paige Foundation for Myotonic Dystrophy
Dedicated to educating potential parents about Myotonic Dystrophy and genetic testing. Information about fundraising, both for research and to assist people who cannot afford testing, news, stories, and about Logan Paige.
www.loganpaige.org
Parent Project Muscular Dystrophy
Parent Project Muscular Dystrophy is a not-for-profit organization founded in 1994 by parents of children with Duchenne and Becker Muscular Dystrophy.
www.parentprojectmd.org
Muscular Dystrophy Association Singapore
Muscular Dystrophy Association Singapore (MDAS) is a self-help organization committed to uplift the lives of people with Muscular Dystrophy.
www.mdas.org.sg
Society for Muscular Dystrophy Information International
Features organization background, disease information, newsletters, membership information, resources, and contact details.
users.auracom.com
Muscular Dystrophy Association (South Australia)
The Muscular Dystrophy Association of South Australia provides a range of individually designed support services for all persons with muscular dystrophy and neuromuscular disorders, their families and their carer/support provider, including therapy, information, equipment loan and counselling.
www.mdasa.org.au
Muscular Dystrophy Association of New Zealand
Organization dedicated to serving people with muscular dystrophy and other neuromuscular diseases who live in New Zealand.
www.mda.org.nz
Parent Project Muscular Dystrophy in Nepal
Parent Project Muscular Dystrophy in Nepal focuses on Duchenne and Becker Muscular Dystrophy, by providing practical, medical and emotional support to the people and families affected by the condition.
www.parentprojectmd.org.np
Muscular Dystrophy Association of Slovenia
Muscular Dystrophy Association of Slovenia
www.drustvo-distrofikov.si
Muscular Dystrophy Family Foundation
Nonprofit foundation that provides adaptive equipment and emotional support to individuals and families affected by any one of 40 neuromuscular diseases.
www.mdff.org