Directory Sites

  • Multicore Myopathy

    Offers an informational and support site for all myopathies.

    home.cogeco.ca

  • Neuromuscular Home Page

    Comprehensive professional resource at Washington University School of Medicine

    www.neuro.wustl.edu

  • Centronuclear & Myotubular Myopathy

    British information point for sufferers and their families of these disorders and associated muscle abnormalities.

    tonilouise.tripod.com

  • Myopathy and neuromuscular junction disorders

    Detailed information on some of the muscle diseases.

    www.neuro.wustl.edu

  • Rhabdomyolysis

    Comprehensive information about the medical condition rhabdomyolysis, complete with tables, pictures, and diagrams.

    members.tripod.com

  • Nemaline Myopathy

    Information and contacts regarding Nemaline Myopathy

    www.davidmcd.freeuk.com

  • Periodic Paralyses

    Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.

    www.ninds.nih.gov

  • NINDS: Inclusion Body Myositis

    Also known as inflammatory myopathy, an information sheet compiled by National Institute of Neurological Disorders and Stroke.

    www.ninds.nih.gov

  • Myopathy

    Information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).

    www.ninds.nih.gov

  • Familial Desminopathy

    Desmin related myopathy is a disorder characterized by accumulation of desmin in the muscle cells. It can be dominantly inherited or occur spontaneously, its effects can range from mild to severe.

    www.desminopathy.plus.com

  • Advancement of Research for Myopathies

    A non-profit organization with the primary goal of speeding up bio-medical research on IBM2, the Autosomal Recessive form of Hereditary Inclusion Body Myopathies (HIBM). Includes a message board.

    www.hibm.org

  • Myotubular Myopathy Resource Group

    Information and support for parents and medical professionals about x-linked, autosomal recessive, and autosomal dominant forms of MTM. Includes a web-based discussion group, newsletter, FAQs, articles, tips, current research, and family stories.

    www.mtmrg.org

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