Directory Sites

  • Rett Angels

    Rett Syndrome forum and online support group sharing personal stories and information.

    www.rettangels.org

  • Rett Syndrome Association UK

    National charity provides support to patients, their families and carers. Features details of the condition, research findings, and clinics, as well as FAQ and an events calendar.

    www.rettsyndrome.org.uk

  • Rett Syndrome Research Foundation

    Promotes biomedical research for the treatment of Rett Syndrome, often misdiagnosed as Autism and Hypotonia. Offers detailed information, links, studies, support groups, and information on the Rett Syndrome gene MECP2 recently discovered.

    www.rsrf.org

  • Rett Syndrome

    The Autism Research Institute distributes an information packet on Rett Syndrome.

    www.autism.org

  • Rett Language

    One family's experience with Rett Syndrome, Applied Behavioral Analysis and Discrete Trial Teaching.

    www.geocities.com

  • Rett Syndrome Fact Sheet

    An in depth look at this syndrome prepared by the National Institute of Neurological Disorders and Stroke (NINDS).

    www.ninds.nih.gov

  • National Institutes of Health

    Information in Rett Syndrome, treatment and prognosis.

    www.ninds.nih.gov

  • Rett Syndrome Association of Ireland

    A support group for the victims of RS and their families. Read about the organization and the disorder.

    www.rettsyndromeireland.com

  • The Sarah Varon Foundation for Rett Research

    A family dedicated to finding a cure for Rett Sydrome. Find announcements, photos, and an overview of the disease.

    www.sarahvaronfoundation.org

  • International Rett Syndrome Association (IREA)

    The mission of the IRSA is: to support and encourage medical research to determine the cause and find a cure for Rett syndrome, to increase public awareness of Rett syndrome, and to provide informational and emotional support to families of children with Rett syndrome.

    www.rettsyndrome.org

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