Directory Sites

  • Family Village Library: Mucopolysaccharidosis

    Lists types, places to chat, and websites.

    www.familyvillage.wisc.edu

  • National MPS Society

    Non-profit organanization advocating for families affected by the Mucopolysaccharide diseases. Located in Bangor, Maine, USA.

    www.mpssociety.org

  • The Canadian Society for Mucopolysaccharide & Related Diseases

    Founded to provide information and support to affected individuals and their families.

    www.mpssociety.ca

  • The Ryan Foundation

    A non-profit organization supporting research for those suffering from Mucopolysaccharidosis, or MPS and their families. Articles, including one on the Ryan's current health status, and links.

    www.ryanfoundation.org

  • The MPS Cup

    A star studded fantasy hockey game and auction, allowing participants to play along side some of hockey's great alumni, while helping to educate both professionals and the general public about MPS and raise money for research.

    www.mpscup.ca

  • The Society for Mucopolysaccharide Diseases

    A voluntary support group in the UK which represents children and adults suffering from Mucopolysaccharide and Related Lysosomal Storage Diseases, their families, carers and professionals.

    www.mpssociety.co.uk

  • NORD: Mucopolysaccharidoses

    Offers a list of synonyms, a general discussion and further resources.

    www.rarediseases.org

  • Mucopolysaccharide Disorders

    Describes the various types and looks particularly at behavioral and educational issues. Put together by the psychologist Michael B. Brown, Ph.D.

    personal.ecu.edu

  • Fairview Health Services (USA): Maroteaux-Lamy Syndrome

    Talks about what the disorder is and treatments being used in clinical trials.

    www.fairviewbmt.org

  • NINDS Mucopolysaccharidoses Information Page

    Information sheet compiled by the National Institute of Neurological Disorders and Stroke.

    www.ninds.nih.gov

  • Morquio

    Yahoo message group that offers support to those afflicted with mucopolysaccharide accumulation.

    health.groups.yahoo.com

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