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Directory Sites
A patient guide for all people with this disorder. Compiled by Professor Michael Moore.
www.uq.edu.au
Porphyrias: Diagnosis and Treatment
Clinical manifestations, diagnosis, etiology and treatment of six types of porphyrias are discussed.
www.medstudents.com.br
Talks about the symptoms of porphyria affecting King George III who ruled England during the American revolution.
www.mhhe.com
Mission statement, objectives of the organization, newsletters and safe and unsafe drugs. Also: A Guide to Porphyria - a complete booklet of information.
www.cpf-inc.ca
An article by Thomas G. DeLoughery, Associate Professor of Medicine.
www.ohsu.edu
Porphyria: The Unknown Disease
Genetic metabolic disorder. Overview of types, testing and diagnosis, and links.
members.tripod.com
A look at the different types of these disease and some of their characteristics.
www.thedoctorsdoctor.com
Short for Erythropoetic ProtoPorhyria, which is a rare metabolic disease. A personal site about this disorder, one of the family of porphyrias.
members.tripod.com
Acute Intermittent Porphyria. A personal experience with this disease touching on nutrition, diet, doctors and a healthier safer chemically free environment.
hometown.aol.com
Acute Intermittent Porphyria Forum
Information and links about Porph. Includes registration form for an email list.
members.tripod.com
Offers links and articles about Porphyria.
www.suite101.com
An e-mail group at Yahoo dealing with the metabolic disease porphyria.
groups.yahoo.com
From Yahoo Groups. E-mail list for people with Porphyria. Friends, families and care givers are welcome.
groups.yahoo.com
Information on porphyrias including the various types and its management.
www.pediatriconcall.com