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Directory Sites

Children's PKU Network
Organisation offering education and direct assistance. Includes details of projects, plus links to food suppliers.
www.pkunetwork.org
National PKU News
Organisation providing information and news to families and professionals. Includes general information about the condition, dietary advice, research, personal stories and support.
pkunews.org
Medline Plus: Phenylketonuria
Definition, causes, symptoms and treatment.
www.nlm.nih.gov
Phenylketonuria
Definition, causes, symptoms and treatments.
www.medhelp.org
PKU-Info.org
Provides general information, plus links to organisations, suppliers and mailing lists. Also includes a forum. [English and German]
www.pku-info.org
Pediatric Oncall
In-depth look at Phenylketonuria (PKU). Includes symptoms, diagnosing, newborn screening, treatment and follow up.
www.pediatriconcall.com
Genes and Diseases: Phenylketonuria
Brief genetic information.
www.ncbi.nlm.nih.gov
Firstplay Dietary Foods LTD
Range of low protein food products for adult and child PKU patients on a low phenylalanine diet.
www.promin-pku.com
PKU Exchange
Offering a UK food database, exchange calculator, recipes, and articles. Includes a message board.
www.pkuexchange.co.uk

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