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Directory Sites
Tracheo-Oesophageal Fistula (TOF)
Support organization for children with TOF and their families. Includes information about the condition, treatment and outcomes.
www.tofs.org.uk
Description and clinical synopsis, plus links to articles and research abstracts.
www3.ncbi.nlm.nih.gov
EA/TEF Family Support Connection
Formed by and for families of children born with EA/TEF (Esophageal Atresia and Tracheoesophageal Fistula) and the medical professionals who treat them.
www.eatef.org
Personal account of this condition, and surgery to receive titanium rib implants.
www.zoelambert.com
Support group and information source for families with children born with VATER, esophageal atresia and/or traceoesophageal fistula.
www.tefvater.org
VACTERL Association Support Group
Run by families, giving information support and help on vacterl association, vater syndrome and related problems.
www.vacterl-association.org.uk
Website of Aled Thomas Griffiths
A collection of information, events and pictures detailing the life story of Aled Thomas Griffiths, who was born with VACTERL association.
www.aledgriffiths.co.uk
Support organization created by parents of children diagnosed with VATER Association. [Registration required]
www.thevaterconnection.org