Directory Sites

  • Epilepsy Action

    Provides information and advice for people with epilepsy. Includes forum, details of freephone and email helplines, and sections for children and teenagers with the condition.

    epilepsy.org.uk

  • Epilepsy - the Information

    Information about the condition, with advice and guidance for those affected by it; includes specific information on Sudden Unexpected Death in Epilepsy (SUDEP).

    www.epilepsyinfo.co.uk

  • The UK Epilepsy and Pregnancy Register

    Part of a study in conjunction with the British Neurological Surveillance Unit to collect information about the safety of anti-epileptic drugs in pregnancy. Information and membership details.

    www.epilepsyandpregnancy.co.uk

  • F.A.B.L.E - For a Better life with Epilepsy

    Organisation whose mission is to promote and fund Vagus Nerve Stimulation Therapy for those with epilepsy uncontrolled by medication alone. Offers help and support to potential patients and their families, linking families in similar situations through a patient support network.

    www.fable.org.uk

  • Equip - Epilepsy

    The NHS Electronic Quality Information for Patients (Equip) project provides a directory of links with information for patients and carers.

    www.equip.nhs.uk

  • Epilepsy Bereaved

    Charity working towards prevention of deaths from epilepsy through raising awareness and promoting research into SUDEP (Sudden Unexpected Death in Epilepsy); also offers support to those affected.

    dspace.dial.pipex.com

  • The Fund for Epilepsy

    Promotes research, teaching and awareness of epilepsy. Information about their activities, and the research institutions they support.

    www.epilepsyfund.org.uk

  • The Epilepsy Research Foundation

    A charity funding research into epilepsy provides information about the condition and therapies, and their activities.

    www.erf.org.uk

  • The National Society for Epilepsy

    Information on epilepsy, including causes of seizures, diagnosis, treatment of epileptic seizures, and lifestyle issues. Also includes a discussion forum.

    www.epilepsynse.org.uk

  • Epiweb

    Resource created by parents of children with epilepsy. Information regarding medication, financial support, alternative medicines and diet.

    www.epiweb.org

  • Joint Epilepsy Council

    National umbrella body enabling its member organisations to work together for the benefit of people with epilepsy. Information about activities, grants and bursaries, and their newsletter.

    www.jointepilepsycouncil.org.uk

  • Rocking4Epilepsy

    Epilepsy forum for support and friendship, with a focus on teenagers.

    dannyjr.proboards44.com

  • BBC Health: Epilepsy

    Information provided by the BBC.

    www.bbc.co.uk

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