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Directory Sites

Refsum Disease
Information sheet on this disease as to what it is, the symptoms, treatment and research being done.
www.ninds.nih.gov
Refsums Disease
Two articles about this disease, clinical description, inheritance, treatment and related diseases and syndromes.
www.srpf.a.se
Yahoo! Group - Refsum Disease Support Network
E-mail based discussion group for people with this disorder and their families for sharing experiences, coping strategies and dietary tips.
groups.yahoo.com

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