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Shwachman-Diamond Syndrome Family/Friends
An email list for families, friends, parents and individuals affected by Shwachman-Diamond Syndrome.
groups.yahoo.com
Category: Health > Conditions and Diseases > Genetic Disorders > Shwachman Syndrome
A mothers story to diagnose this disorder before a team of doctors could.
www.chariot.net.au
Category: Health > Conditions and Diseases > Genetic Disorders > Shwachman Syndrome
Offers a general discussion, the synonyms and further resources.
www.rarediseases.org
Category: Health > Conditions and Diseases > Genetic Disorders > Shwachman Syndrome
Shwachman-Diamond Syndrome International
Support organization helping the victims of this disease. Provides a network for families to receive information, advocacy, and emotional support, and keep abreast of the most current medical information available.
www.shwachman-diamond.org
Category: Health > Conditions and Diseases > Genetic Disorders > Shwachman Syndrome
A definition of Shwachman syndrome, its inheritance pattern, pre-natal diagnosing and a support group in the United Kingdom.
www.cafamily.org.uk
Category: Health > Conditions and Diseases > Genetic Disorders > Shwachman Syndrome
Profiles SDA, a nonprofit that educates doctors and families about shwachman-diamond syndrome and also supports research.
shwachmandiamondamerica.org
Category: Health > Conditions and Diseases > Genetic Disorders > Shwachman Syndrome
Katie has Shwachman-Diamond Syndrome and needs a bone barrow transplant. Find disease information and links to support organizations.
www.katiesjourney.50megs.com
Category: Health > Conditions and Diseases > Genetic Disorders > Shwachman Syndrome